My Top 3 Current Challenges, Top 3 Tips, and Top 3 Wishes for the future for having Limited Scleroderma (CREST Syndrome)

My 3 biggest current challenges due to my diagnosis of Limited Scleroderma (CREST Syndrome)?

     1.  Gastrointestinal problems causing a compromised immune system due to leaky gut and figuring out what is best to rebuild my immune system to heal and staying away from foods that cause allergies.

     2.  Raynaud’s Phenomenon with red, white, and blue fingers with cold, pain, and stress along with swelling in my fingers and hands causing my hands to be tight and mottled in color with dry cracked cuticles and red dots along my cuticle lines.

       3.  Bone loss due to dental problems.

What are your 3 top tips for living with your diagnosis?

      1.  Research your diagnosis and how to manage your symptoms holistically.  Be your own advocate and keep searching for the best way to care for yourself. 

2 2.  Live simply by learning to say no to stressful situations and pray and trust that God will heal you.      

      3.  Manage your symptoms consistently and follow-up with annual tests and your doctor to get the best care. 

What are you 3 wishes for the future regarding Scleroderma?

       1.  Doctors, Specialists, & Dentists that know how to care for their patients by looking at the patient as a whole and seeking out the root cause and finding ways to care for them, instead of just giving medicine to put a band aid on the symptom to avoid caring for the individual patient.

2 2.  There would be a cure using food as medicine and a known cause of why the disease affects those with the disease.

   3.  Health Insurance would cover what is needed to benefit those of us dealing with the disease as that causes unneeded stress and makes symptoms worse.